An update on Lizzie Bell, a Tucson woman battling a rare disease

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An update on Lizzie Bell, a Tucson woman battling a rare disease

By Sasha Loftis. CREATED Dec 23, 2013

TUCSON (KGUN9-TV)- We have an update on 19-year-old Lizzie Bell, the woman battling a rare disease called Diamond Black Fan Anemia.

Many saw the Bell family on ABC's hit show "Extreme Home Makeover," as their team built them a home. KGUN 9 has followed their story since then.

Bell is now home from Minnesota, where she received a life saving bone marrow transplant.

"I'm loving being home. I'm loving the warm weather," Bell said. "Minnesota is very cold right now."

She underwent a bone marrow transplant at the University of Minnesota Medical Center on June 30. She's been there with her mother Kathy ever since, but she's home for the holidays.

"Just hanging out with family and Christmas, just being back in Tucson and the food and everything is very nice," Bell said.

Lizzie is undergoing chemo for the first time and has lost some taste, but she craved one Tucson favorite.

"Some of your favorites aren't back yet. Lizzie:  Yeah I just wanted Eegee's."

Lizzie has battled a rare disease for 19 years, but she and her family hope this transplant give her a new start.

"I believe it's like a cure from the transfusion dependent part, but you'll always have the Diamond Black Fan,"  Bell said. "You just won't have the anemia, which is half our battle."

With the aid of a therapy dog named Penny Lane and more treatment in Minnesota, Lizzie is ready for the future.

"I"m ready to start college and I'm ready to see more of the world and everything," she said.